Your condition
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Cureledger · Health data marketplace
The real-world evidence rare disease has been missing.
Cureledger builds de-identified, consented, longitudinal datasets — sourced directly from patients through our apps, held in a trust, and released to researchers on fair terms. Buyers get research-ready data with real provenance; the families who generate it share in the value.
For researchers & partners
Data you can actually build on.
Cureledger datasets come from real people living with a condition, captured over time and prepared for research. For pharma & biotech R&D, academic researchers, and medical-food or consumer-health teams.
Real-world & longitudinal
Captured in daily life over weeks and months — not a one-time clinic snapshot.
De-identified & consented
Every record is de-identified to the HIPAA Safe Harbor standard, from contributors who explicitly opted in.
Clear provenance
You know exactly how, when, and from whom each dataset was gathered.
Access on fair terms
A Trustee reviews each request; data is released only under a signed data-use agreement.
The catalog
One community at a time.
We start where the need is sharpest: real-world evidence first, then acquired and registry data layered on top. Every dataset is de-identified, consented, and released only through the trust.
Available
Phenylketonuria (PKU)
Longitudinal diet and blood-phenylalanine tracking from adults managing PKU in daily life — logged at the kitchen table, not the clinic.
- Daily phe intake
- Blood-phe results
- Food & diet logs
- Formula adherence
Metabolic researchers · medical-food & PKU therapeutics
Explore datasetIn development
Sunscreen effectiveness
Real-world sunscreen use, UV exposure, and skin response — how protection actually performs outside a controlled lab.
- Product & SPF
- Application habits
- UV exposure
- Skin response
Consumer skincare brands · dermatology research
Explore datasetIn development
Ehlers-Danlos syndrome
Patient-contributed symptom, joint, and comorbidity tracking across everyday life with EDS — the connective-tissue picture clinics rarely capture.
- Symptom diaries
- Joint & pain logs
- Comorbidities
- Flare events
EDS researchers · connective-tissue therapeutics
Explore datasetFor patients
Turn the data you already generate into value.
The health data you create every day is worth something — and it should work for you, not just for whoever collects it. Each condition has its own app; through it you contribute de-identified data on your own terms, held in a trust, and share in the value when researchers put it to use.
- You stay in control — contribute on your terms, opt out anytime.
- De-identified before it ever reaches a researcher.
- Value flows back to your community — never sold behind your back.
“Research runs on patient data. Cureledger makes sure the people who generate it are owners, not just subjects.”
Get access
Tell us what you're looking for.
Whether you want one of the datasets above or a condition we haven't built yet, leave your details and we'll be in touch about access, terms, and timing.
We email when there is something real to report. Your address is used only for Cureledger updates and is never sold or shared.