Ehlers-Danlos syndrome
A real-world view of life with Ehlers-Danlos — across symptoms, joints, and comorbidities.
What it is
The Ehlers-Danlos syndromes touch nearly every system in the body, but that whole-person picture is scattered across specialists and rarely captured in one place. Cureledger assembles a connected, real-world view from the people living it.
How we build it
Where the data comes from.
Real-world evidence first
We start with what patients report from daily life — symptom diaries, joint and pain logs, comorbidities, and flare events — the everyday reality clinics rarely record.
Other datasets, layered in
On top of real-world evidence, we source complementary datasets — registries and longitudinal cohorts — to give researchers a fuller connective-tissue picture.
What's in the data
The fields you can work with.
- Symptom diaries
- Day-to-day symptoms across the many systems EDS affects.
- Joint & pain logs
- Subluxations, dislocations, and pain tracked over time.
- Comorbidities
- Co-occurring conditions common in connective-tissue disorders.
- Flare events
- Onset, triggers, and course of symptom flares.
Who it's for
Built for EDS researchers and connective-tissue therapeutics teams — to study the real-world course, comorbidity patterns, and unmet needs across the EDS spectrum.
EDS researchers · connective-tissue therapeutics
Living with this condition?
Contribute your data.
Each condition has its own app for the people who live it. The Ehlers-Danlos syndrome app is in development — when it launches you'll be able to contribute de-identified data on your own terms and share in the value it creates.
We're building the Ehlers-Danlos syndrome app now. Check back soon — or ask us about contributing early.
Researcher or partner?
Tell us what you need — we'll be in touch about access, terms, and timing.